Masinja had a pretty boring day today. No changes for his vapotherm settings. He is over 5lbs now. He was looking really peaceful during both of our visits, so we let him get his sleep. The doc let us know today that he has an abdominal wall defect. It's nothing major, so they're going to fix it when they put his ostomy back together. He's pretty happy right now, so they won't mess with him too soon. Maybe a few weeks from now.
Madelinja got a new lock for her vent tube today. She's outgrowing the tube, and air was moving around the outside of it, so it sounded as if she was weezing. They changed it today, but it still sounded the same. Her vent settings are lower than yesterday, but she's being lazy and riding the vent. She also might have a change in her feedings, as she's getting more residual in her belly, and if she doesn't digest the formula, it will start to run straight through her.
The doc is going to talk to the neurosurgeon on Monday (he's out of town) about Madelinja and her options as far as another reservoir or a shunt. We'll let you know what becomes of that.
That's all for today.